We spent the weekend watching Maura swim and swim and then swim some more.  Facebook reminded me a few times of what traditionally is on my mind during this weekend each year.  Mo’s diagnosis.  I didn’t have the video updated and thought for a while, maybe it’s time to stop.  But then I remembered how […]

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I cannot believe it’s been another year since I mispronounced Dermatomyositis as Dermato-mitosis…and now that I understand the latin better, I think I’d prefer the latter, but we were not given choice in the initial onset, so here we are.  I don’t think you can prepare to have a little girl who has been on […]

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There will be photos of our trip to Hawaii, someday, after I catch up on blogging client photos… But for now here are a few of our best friends (and seeing these two little ones was actually Maura’s wish!).  I was lucky enough to squeeze in a quick session with them before they head back […]

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The kids wanted me to call this “Baby Head.”  They think it’s really funny. Yesterday was their Grandpa’s birthday and we had a chance to hang out with Grandpa at his camper.   We also had a chance to take a few photos of Aiden.  Poor second child who doesn’t get 50 photos taken a day.  […]

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As you can imagine with a chronically ill child, there is a lot of talk about our “new normal.”  And it’s true, our family life is different than it was and different than I thought it would be.  But one thing I’ve learned is that most everyone has challenges, whether it be a chronically ill […]

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It’s no secret this past year has been a rough one for us and many times it’s challenged my faith.  In those moments when well-intentioned people say things like, “it’s all in God’s plan…” or “God only gives you what you can handle…”  When you have a sick child (and I would guess when you […]

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So one of my student’s asked me an innocent question today… “What’s the date Mrs. Couch?”  I thought for a minute and said, “It’s February 19th.” And then it hit me.  One year ago today Maura was diagnosed with Juvenile Dermatomyositis.  (A word that my spell check still thinks I spell incorrectly because obviously I […]

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“So give me hope in the darkness that I will see the light Cause oh they gave me such a fright But I will hold as long as you like Just promise me we’ll be alright” – Mumford and Sons This past month marks a year from the start of Juvenile Dermatomyositis showing its face […]

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2012 was a tough year for our family to say the least, but we did our best to keep life normal and enjoy the time we had together, no matter the situation.  Here’s a little video of our year in pictures. (*note – for visitors that aren’t familiar with our daughter’s year and disease, please […]

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Well, surprisingly enough – here’s my post I started the day after Thanksgiving.  Time just goes too fast.  Here’s our most recent list of things we are thankful for: 1. The chance to meet another little Couch (coming June 2013 and to answer a popular question – the shoes are grey, don’t know if it’s […]

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