“So give me hope in the darkness that I will see the light
Cause oh they gave me such a fright
But I will hold as long as you like
Just promise me we’ll be alright”

– Mumford and Sons

This past month marks a year from the start of Juvenile Dermatomyositis showing its face in our lives.  It started with a rash on Maura’s cheeks that looked like wind burn.  So rosey cheeks combined with some strange lab results have caused me to lose sleep the last couple of weeks.  Through it all Maura’s strength looks great and her rhuematologist has made time to listen and take our concerns seriously.  For now we just keep doing what we are doing and watch closely, hoping it will all be alright.