Hope

April 8th, 2012

I figured Hope was a good post title on Easter.  I’m usually not good at naming posts, so I pretty much go with whatever comes to mind first since none of them are likely to be witty anyway 😉

Over the last couple of weeks I have been trying to make sure to capture some things that hopefully won’t be happening, or at least won’t be happening as often.  On the 27th of March Maura had what might be her last weekly infusion (at least for now and she will still be on daily oral steroids and weekly chemo meds) of high volume steroids.  These infusions started right away – three the first week – two the two after that – and then one for the next four weeks.  This past Monday she just got the chemo meds.  So tomorrow we get our first labs after no infusion, lots of fingers crossed that her numbers are still improving.  Her activity level is going up by leaps and bounds, so we are hopeful that tomorrow will bring good news.  Needless to say, I made sure to take some photos of what might’ve been her last infusion, I wanted to be sure I had something to show her someday, so she can see all that she went through and what a strong little girl she is.

Then it was my birthday and I used it to my advantage to get some good photos with all of us.  Had to set up the fancy camera for Wes, so in return I got these shots 🙂

This last week she had many visitors, both sets of Grandparents, an Aunt, and three cousins.  It’s been amazing to see the compassion that seven, ten, and even four year-olds have and show to Maura.  As crappy as JDM is for her, all these amazing people are reaching out to her to help her and it’s working 🙂

Today was no exception – an entire Easter meal that was gluten free.  All the candy in the egg hunt – gluten free.  She could have everything today and for the first time in a long time she played with her cousins like normal and it was amazing.

And in honor of new beginnings – Maura planted her own seeds today 🙂

4 Comments
  1. Melanie Mahaney says:

    This post brought tears to my eyes. So great to see Maura so happy.

  2. amandad0 says:

    We’re pretty excited about it too 🙂 Hope you had a great Easter with your little man!

  3. Kelly Harrison says:

    Happy to see this post 🙂 thanks for the update -continued prayers for you all!

  4. Karmin says:

    What beautiful pictures Amanda! She’s so beautiful! Andy liked the one with the action figue ofcourse. We miss you and hope you will let us know if there is something we can do.

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