We spent the weekend watching Maura swim and swim and then swim some more. Facebook reminded me a few times of what traditionally is on my mind during this weekend each year. Mo’s diagnosis. I didn’t have the video updated and thought for a while, maybe it’s time to stop. But then I remembered how when Maura first was sick, I would find information on JDM on a blog and I was there looking for any speck of hope I could find, and the information would stop just when the story started turning around toward the good. I knew then, that if we were lucky enough to have moments where JDM didn’t rule our every decision and thought, that we would remember to share the hope. I also think it’s important for me to always remember that no matter if someone “looks” fine, it is not a sign that they are fine. That taking time to remember all that she’s been through is real and remains with her, even with after hearing the magical word “remission.”
2016 was the year Mo was able to take her last Methotrexate pill for now. She has heard the word remission, with a reassurance from her specialist that she has a shot to be one of the lucky ones, a good chance of being mono-cyclic. And we are so incredibly grateful.
If you are new and don’t know her story, there are a few different links from the years that tell Maura’s story (2016, 2015, 2014, and 2012 – warning, I still cannot read this first one, maybe someday).
So today, our hope was in watching her swim, accomplish her goal of a legal backstroke flip turn, and being a supportive team member: