Two years ago today I blogged a post called Tomorrow.

It has been quite a journey over the last two years, but I really feel like I can’t say much.  I’m not the little person who had to endure (and continues to have to endure) having to face JDM as a part of my life.  Maura is such a strong person and I am in awe of her courage and determination daily.  We have high expectations for her and I think at times I know that I forget that day by day her little brain has to comprehend weekly chemotherapy, daily steroids; the possibility that she’ll wake up and her legs won’t work again.  I can’t even imagine what that is like in the mind of a 5 year-old.  And oh how I wish I could bear that burden for her.

She is doing very well – she’s strong physically, balance is good, no rash.  We are so thankful and blessed for all the wonderful care she has received not only from the medical professionals here in Green Bay, but also for all of our friends and family who have supported her (and us) through the last two years.

Just a little video with one of her favorite songs.  (If you are visiting through a link from a friend and unfamiliar with our daughters condition, please be kind in your thoughts regarding physical changes you see, they are caused by the medicine and out of her control).

Maura – JDM Journey, two years later from Amanda Couch on Vimeo.